I received The Life We Never Expected, in exchange for honest review. The book was written by Andrew and Rachel Wilson.
I don't remember requesting the book, but I was glad when it arrived. I have two special needs children. My oldest has autism, adhd, and creatine deficiency disorder. My youngest has
- Sensory processing disorder
- Creatine Deficiency Disorder
- Global development delays
- suspected long QT syndrome
- Static Encephalopathy (breath holding spells, which can cause seizures.)
- Sleep apnea (the Static and Sleep is why he has a heart monitor and pacemaker).
- X chromosome errors
The book provides stories from people, going through the same thing I am. The authors have childlren with regressive autism. The book provides bible verses and how to apply the verse to raising a special needs child.
I liked the chapter on the orange. The authors said what if you are at dinner and think you are about to receive a gift of a chocolate orange from a friend, but when you open it up, it's a real orange. Nothing is wrong with the orange, but it is not what you are expecting. Everyone else at the table has received chocolate oranges, so you feel a bit disappointed and let down. You may feel isolated and alone because others got something which you did not (I do have a lonely, isolated life).
I admit I do not want to change Brad's diapers for the rest of his life. I don't want to deal with broken windows and holes in the walls. I don't want to worry about what will trigger a breath holding spell or a seizure from Kalen. I definitely do not want to bath Brad when he older because he refuses to use soap, but I have to because that's my job.
You can purchase the book using the link above. The book comes in paperback and kindle format.